tag:blogger.com,1999:blog-1634443036491852586.post9138456346561242753..comments2023-09-10T14:39:45.979+01:00Comments on Maggie and Alice: Hard TimesPaul Saxton and Shannon Forbushhttp://www.blogger.com/profile/01147130606938558502noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-1634443036491852586.post-24210159282789591992012-05-14T20:45:21.868+01:002012-05-14T20:45:21.868+01:00Actually we don't mind you having a moan at al...Actually we don't mind you having a moan at all - in fact you are bloody entitled to moan and should do so more often - it's good for you - and its good for us to listen for various reasons:<br /><br />a) it makes us realise (because we need reminding daily) how bloody lucky most of us are and how little we really have to complain about compared with families like yours<br /><br />b) it reminds us (yes we need a lot of reminding) that we don't do enough for the most vulnerable in society - which is why I get hacked off when I see taxpayers' money being wasted on vanity projects and preserving old tat for the sake of sentimentality<br /><br />c) it puts all the other whining moaning gloom-mongers into perspective because most of them have bugger all to feel miserable about and should count their blessing a bit more.<br /><br />You are human and you are suffering - and you love your children which means you suffer more for them - so you should never feel guilty about feeling the pain and the hurt. <br /><br />By the sounds of it, you are effectively going through the five stages of grief (denial, anger, bargaining, depression, and acceptance) everyday for the potential that Maggie lost - had stolen from her - possibly all five stages at once - that is exhausting and not something most of us can appreciate.<br /><br />Putting a brave face on it only gives people an excuse not to care too much and not to get involved. Tears are good and justified - only the cold blooded would say otherwise.<br /><br />You are also being let down by the system and the people who run the system should feel bloody guilty.<br /><br />Wish I knew what we could do to help - even if only in some small way that might make your life a little bit easier. Do say if there is something.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-17237487069915269252012-04-23T13:43:05.166+01:002012-04-23T13:43:05.166+01:00I also have a2yr old tube fed daugher with cp. i&#...I also have a2yr old tube fed daugher with cp. i've only got a minute but wanted to point you in the direction of the blended diet uk group on facebook.also blenderized food for tubies group and the youstartwithatube blog. these are all people who give food rather than formula to theie tube fed child (as do i). please look into this as it really is a life changing option.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-66931775879412811532012-04-19T23:15:07.556+01:002012-04-19T23:15:07.556+01:00I don't think you should give yourself a hard ...I don't think you should give yourself a hard time about having a good old moan from time to time, it sounds really tough! Most of us moan about nothing much...me included! xxMarianoreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-18154113688872161542012-04-11T19:11:45.892+01:002012-04-11T19:11:45.892+01:00Just wished I lived closer and could come and give...Just wished I lived closer and could come and give you guys a bit of a break (especially at night).I am sure you feel better after a bit of a moan and we appreciate our lives a bit more realising what you are going through.busybusybeejayhttps://www.blogger.com/profile/04570020362062932692noreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-44900348439525295712012-04-11T18:08:01.467+01:002012-04-11T18:08:01.467+01:00There's nothing I or anyone can say to improve...There's nothing I or anyone can say to improve the painful things for you but know that the two of you have plenty of ears and shoulders there for you<br />Claire RxClaire Readhttp://www.poppyvalentine.comnoreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-73683769120307875462012-04-11T17:48:50.388+01:002012-04-11T17:48:50.388+01:00Of course it's shit and anyone who says otherw...Of course it's shit and anyone who says otherwise should get a huge punch in the gob (and I'll do it!)<br /><br />Love to you all <br /><br />Sally xxxxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-20119034803648829682012-04-11T17:40:00.075+01:002012-04-11T17:40:00.075+01:00Sympathy is cold comfort I imagine. How about me a...Sympathy is cold comfort I imagine. How about me and Juni cook some food and bring it round with some beer/cider. Feed, water you and bog off after. At the very least it saves having to think and act on what to cook for one night..<br /><br /><br />RnJxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-65190420349855066102012-04-11T17:38:59.693+01:002012-04-11T17:38:59.693+01:00hugs Paul & Shannon, I can't fix anything ...hugs Paul & Shannon, I can't fix anything obviously, and I think the last thing you want me to say is positive annoying things, but just want you to know I'm listening xxxxMuppetellehttps://www.blogger.com/profile/01934479511967435613noreply@blogger.comtag:blogger.com,1999:blog-1634443036491852586.post-13745549267384307992012-04-11T17:12:39.357+01:002012-04-11T17:12:39.357+01:00Big love to you all
Abbie
XxxBig love to you all<br />Abbie<br />XxxAnonymousnoreply@blogger.com