Thursday, 7 January 2010

Chewing The Fat

Some people, when dealing with tragedy, lose loads of weight. This hasn't happened to me. The opposite has happened to me. My already large appetite simply grew larger.

I reckon it's an evolutionary thing. When threatened with a crisis, my job is to eat more in order to keep the species going (that, and having loads of kids). So whether it's global warming, nuclear destruction or a zombie attack, you can all count on me to ensure that us humans are here to stay.

And you can also count on Alice. Because she's an eater too. As you can see.

There's been plenty going on here recently. Which is why we haven't updated in a while. Not just because we haven't had the time but also because there's quite a lot to say. And even that will have to wait for another post because... well, Shannon knows the ins and outs of it more than I do. But Shannon's in bed now, getting some well-deserved rest.

In a nutshell it's this: we're having a big planning meeting next Wednesday at the hospital. This will include consultants, surgeons, doctors, speech therapists, nurses and anyone else who'll be involved in Maggie's future care. We - they - need to get on top of everything and stop pissing about. One of the key things is to decide whether Maggie's going to have a gastrostomy. Or whether she'll continue being tube fed. And whether they'll tighten up her Lower Esophageal Sphincter valve. Or whether they'll decide her reflux can be eased with Gaviscon. Y'know, little things like that.

And this, hopefully - at the least - will result in her getting home soon. Because she really needs to be at home.

In other news, Alice is thriving, piling on the pounds and enjoying the snow. She's also in the early stages of laughing and gurgling (so by the time you get here Mary she should be in hysterics). She is, as they used to say, a real smasher.

But of course, Alice's smashingness is rather bittersweet. We were sitting with her on the sofa this evening, making her laugh and just enjoying being parents, when it hit us that we should have another little girl there, doing the same thing.

It's been three months now and it still gets us. The trick, we've discovered, is to simply bottle it all up and pretend that everything's okay. How else will we manage?

Click the pic to see the latest pics:


  1. Alice and Maggie...Aunt Mary is coming in just about two weeks!!!!! Alice, please laugh with me, sweetheart....not at me! Sounds like lots of answers to come next week....hey, Bob and I are getting some too. Hoorah for answers! Can't wait to hear wait some of the answers for Maggie are.....because she really needs to be home soon. Fantastic pics, as always.

    Now....can we please do something about the weather you've been having.....what's this I read about the longest cold spell in 30 years??? And we're in freezing temps here...Where has the heat gone?!?

    Sending some Texas love.....
    Mary n Bob

  2. Oh my god, she's growing soooo fast!! Look at her cheecks and cheeky eyes! Here comes trouble. Love it!
    I'll be thinking about you in your big meeting. Hope for some good news. Analou seemed ok with the Gaviscon, pink you know ;-) Would be ok if that was all Maggie needed. Anyway, here's to some clartiy and a plan. Love, Wini xxx

  3. can't spell, oh well.. Wini

  4. Brilliant blog (i write one on wordpress). My eldest daughter was born with extensive global brain damage,it has been a long hard road at times but she is now 12. She is physically very disabled but despite this she is a very happy girl. I read your first post and i also find writting a blog cathartic at times too. As i'd read your blog i just thought it was polite to leave a comment especially as some of it really struck a chord with me. Take care and best wishes, Jo.

  5. Happy 3 month birthday, sweet girls!!!

    We love you!

    Aunt Mary and Uncle Bob

  6. Hey, great photos as always!

    God luck with the meeting on Wednesday. Great that you are focussing on getting Maggie home. I know it's still a way ahead but it's there and it's something positive to focus on. If you face barriers, let me know and I'll put my team of highly skilled advisors into action!

    On the "scoffing" front: join the club! I'd really like to be one of those sylph-like creatures who looks all pale and interesting and floats around unable to let a morsel pass my lips. The sad reality is that I meet trauma head-on with a full appetite for roast dinner, sponge pud and custard. With a side order of chocolate digestives.

    Sleep is also a weird one. I'm, unfortunately, a horible insomniac yet the strangest thing happened to me when I was in hospital with Tom. When things hit rock bottom, my body did this weird hibernation trick and I went into a really deep sleep. I was too embarrassed to admit it at the time but I actually slept straight through the night at the hospital when Tom was really bad. I'm sure that sometimes your body just has to take over in order for you to survive. Or maybe I'm just a lazy bastard as well as a greedy one!

    Love to you all!
    H & Co

  7. Meant to say GOOD luck.