Sunday, 30 May 2010


We dropped Maggie off for a few days' stay at Quidenham this afternoon.

We really miss her.

Friday, 21 May 2010

All The Way From the USA

We've got Shannon's parents with us at the moment. It's really lovely having them here. They're marvellous with the girls and I think it's obvious that the girls really love them. Some solid bonding stuff going on!

That sort of explains the lack of posts recently. It's been very busy.

Hopefully Shannon will write something soon. Particularly about Alice's first trip on the train. To the seaside. Which I missed. And really regret missing.

What a fucking idiot I am.

But never mind eh?

In a nutshell: we're still having all the usual crying/puschair/car seat/feeding/vomiting problems. But overall - more than overall - I'd say that Maggie is making fantastic progress. Every day she's a little more alert and bright.

But, as always, we have to stay on the ground a bit about that. She's still not showing any signs of being able to feed properly. And that, right there, is all the indication we need that there's something not right going on in her brain.

Like we didn't know.

Alice. Well, Alice is thriving and developing in the most beautiful way. And she's still as good as gold.

We've got some lovely, proper photos to post - but in the meantime here's a selection of pictures taken with the crappy iPhone camera:

Friday, 14 May 2010

First Love

In lieu of a new post about Maggie and Alice, why not have a look at my new music blog? I write it because I haven't got enough on my plate. And because it's also a real distraction.

Click the box:

Monday, 10 May 2010

Downs. No Ups.

It's been a very tough week this past week. The progress we seemed to have made turned out not to be progress at all: she's now as bad in her pushchair and the car as she always was. And her sleep is back to being very erratic too.

She's very demanding and very difficult to manage. She's also very noisy and nothing seems to please or placate her. We can't go out with her and she doesn't sleep when we stay in. So there's hardly a break from her, hardly a break from it.

Unsurprisingly, Shannon and I have been quite down recently. I know that it often appears that we're coping very well and making the best of it, but I think we're reaching the end of that. It's just getting to be too much.

It really is quite miserable.

Monday, 3 May 2010

Ups. And Downs.

It's been, relatively speaking, a fairly good week for Maggie. But perhaps not so great for us. Very stressful and tiring. And sad, too.

The week started badly with Maggie picking up a dose of RSV at Quidenham. Never heard of it? Neither had I. But here it is: RSV.

We'd noticed that she was a bit snuffly in the morning so decided to take her up to the Children's Assessment Unit (at the hospital) that evening. We rang in the afternoon to tell them we'd be there at 5.30pm to fit with her tight feeding schedule. We arrived just after 5.30pm. We left over three hours later, with both Maggie and Alice tired, hungry and very unhappy. Almost three hours of standing around while being told that a doctor would see us soon.

When he finally arrived he took a swab, gave us some nose drops and told us to keep an eye on her. The bloke next door could have told us that. And he'd have been a bit quicker about it too.

The good part of this week is that we've been getting out and about more. Nowhere special, just trips out in the car and with the pushchair. We went to the city on Tuesday and, for the first time ever, Maggie didn't get hysterical. In fact, she seemed quite happy and even fell asleep in the pushchair. I know that may sound like something minor but, really, it's massively significant. We were really happy.

(We were also happy that day because I picked up a copy of the new Fall album which, I can guarantee, is better than anything you've heard this past year. These past two years.)

Mind you, we've been out a few more times this week and those trips weren't as successful. But still better than they used to be. I think we should go out somewhere every day, even if it's only to the supermarket - so that she gets used to the car and the pushchair. So that she gets used to normal life.

We had another, similar, triumph when, during the course of being fed, Maggie fell asleep in her chair. Again, it sounds like a minor thing, but it's equally significant. She normally manages ten minutes in that chair before howling and arching. It just proves that it is possible for her to relax a bit and behave a little more like a normal baby. We just need to persevere.

Other good news is that she was visited on Wednesday by a woman from the Sensory Support Unit. It became apparent quite quickly that her expectations were that Maggie would be in a bit of a state, sight-wise. She was pleasantly surprised then that she seems to be able to see reasonably well and is fixing and following. She's not brilliant, and she still has a fair way to go, but it's progress. Good progress.

Overall I'd say she's more responsive and alert than she used to be. We're getting more social smiles and it's obvious that she's aware of, and engages with, her environment. Of course, this all seems fabulous until we glance at Alice and see how far ahead she is. But still, it is progress - and it shows us that progress is possible.

The not so good parts of the week have been our continued battle with her sleep. It's all getting a bit much. We sit there for two hours every evening, feeding her and coaxing her to sleep. Throughout the whole of this time she screams and cries. She does the same thing when she wakes in the middle of the night. Written down, it doesn't sound so bad. But it really is extremely frustrating and tiring. On top of that, she doesn't sleep much in the day. Not only is that not good for her and her development, it also means that we get absolutely no break. And when I say we, I really mean Shannon - because at least I've got work as an escape.

Our lives are all Maggie, Maggie, Maggie. Which would be fine if she was just a little easier and, more importantly, if we didn't have Alice. Poor Alice, who is just so perfect and well-behaved and lovely and who gets so much less attention than she deserves.

* PS If you're interested, I was profiled on the highly-respected Normblog site last week where I talked about, among other things, this blog. More here.

Click the picture below for a gallery of recent pics: