There'll be a little wait on more photos, I'm afraid, as Paul's sorting Alice's midnight/1am feed (he's much better at getting her fed and winded and sleeping soundly) and I'm pathetically not savvy enough to download stuff from the camera and get it to appear on the computer.
Our tiredness has been exponentially increasing over the past few days but we're still making it through the days without sleeping - little second and third winds seem to appear from somewhere, and I think in a strange way the situation with Maggie gives us more energy to handle all of this. Sort of.
Yesterday the decision was made to switch Maggie from breast milk to a special high calorie formula, as the fact that she isn't gaining any weight is becoming a more pressing concern. A nurse described it to me as a 'failure to thrive' - you gotta love that sensitive hospital terminology. But it is upsetting to see the ever-widening difference between Maggie and Alice - Maggie still looks, and feels, like a delicate newborn and Alice feels like a growing baby.
There was a worry that the formula wouldn't agree with Maggie - she'd been sick when they tried a different kind previously - but it's one day on and she's keeping it down, and still keeping to two-hourly feeds. Better still, she seems to have needed less suction and oxygen since making the switch - the only trade off is that the stuff is so heavy that she's pretty much knocked out as soon as it goes down. But she had a lovely colour to her cheeks all day and seemed very content and peaceful.
All of which made it more difficult to meet with people from the local children's hospice this afternoon to talk about the care and support they can offer Maggie, and us, once we leave the hospital and for the years to come. Lovely people, and a lovely service they provide - but it's just a reminder of the reality of Maggie's disability. A reality that we're getting quite good at avoiding a lot of the time.
To be fair, Maggie's pretty good at helping us to avoid it when she's so cuddly and cute and responsive and perfect - and when it looked like she smiled today when I took the piss out of Paul in front of her. That's my girl.